I, too, suffer from chronic, invisible illnesses.
I have fibromyalgia. I have a permanent back injury. I have depression and anxiety, and I work hard to keep those under control. I strive to take good care of myself, and to manage my conditions. I avoid aggravating them. I also make every possible effort to stay positive and to do the things in life that I enjoy doing.
The fact is, though, no matter what good care I take care of myself or how positive and proactive I am, I cannot heal or cast off my invisible disabilities.
The debilitation is real.
The exhaustion is real.
The misconceptions are real.
And the judgement? Many people would not be willing to believe how real, and how consistent, and how very, very toxic that is.
The critics are only right about one thing: I don’t look sick.
That’s because I’ve been faking being well for years.
This year Invisible Disability Awareness Week falls on October 18th to 24th.
According to the Invisible Disabilities Association, the term invisible disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunction, brain injuries, learning differences, mental health disorders, as well as hearing and visual impairments. They are not always obvious to the onlooker, but can sometimes or always limit daily activities range from mild challenges to severe limitations and vary from person to person
Because Invisible Disabilities are not visible to the eye it can cause issues. Some of these issues are judgments when we use disabled parking or disabled bathroom stalls and others feel the need to make an issue out of it… because we do not Look disabled.
1994-1995 Survey of Income and Program Participation (SIPP) found that 26 million Americans (almost 1 in 10) have a severe disability, while only…
I get it. We’re at home, our kids are home, we can’t go anywhere, so let’s stay in our pyjamas all day! Right?
When everything else in the world is in limbo and the rules are changing on a weekly — or daily — basis, it’s really important for our health to keep some kind of routine and not let the basics fall by the wayside.
Nutrition matters. It’s tempting to live on pizza, chocolate and peanut butter sandwiches, but being sure we eat well and nourish our bodies properly is crucial to maintaining good health. The healthier we are, the more resistant we are to germs of any kind, and the recovery from any bug we might pick up will be quicker. Not only that, but we’re going to have to go back to work sooner or later, and it would be good if those business suits or uniforms still fit when that time comes.
Hydration is also crucial to keeping the body healthy, but most of us don’t drink as much water as we should. It was only when I started keeping track of how much I was drinking in a day that I realised how far short I had fallen from what my body actually needed on a daily basis. Remember, too, that alcohol is a diuretic, so for every beer or glass of wine, we need to drink more water. For a great discussion on how much water we need to drink, listen to this interview from ABC Australia.
Exercise is similarly important, and for more reasons than just not bulking out while we’re hibernating. Exercise is good for the brain and the emotions as well as the body, so even when we can’t leave home, it’s important to walk, or get on the treadmill, toss a ball with the dog, follow a cardio or dance video tutorial, or get into stretching and yoga. Even cleaning out a cupboard or doing some gardening qualifies. There are lots of options for people to pursue at home, and your exercise can be as gentle or vigorous as you want it to be so there’s no excuse for staying in bed or living on the couch for the foreseeable future.
While it has been widely publicised that sunlight will kill the corona virus doesn’t like the sunlight, that is not actually true. Even so, it dos kill other germs and bacteria. Stepping outside the house and into the fresh air and sunshine is highly beneficial for wellbeing. You don’t have to go far – just into the yard will do if you can’t or don’t want to go any further. While people who live outside the city are at a definite advantage here, most neighbourhoods have parks, gardens or reserves where you can go and walk without being in close proximity to anyone else or even touching anything. Letting light into your house is important, too. it helps you maintain a natural circadian rhythm, and therefore promotes better sleep hygiene.
Personal hygiene may seem mundane, and there are probably people out there who are treating it as optional, but showering every day, wearing deodorant, and taking care with presentation is an important part of taking on each day with a positive attitude. It’s psychologically proactive and It makes a difference to our physical health and wellbeing. Just as importantly, it makes you much more pleasant to be around. You might just be at home with your family, but they are actually the most significant people in your life. If you couldn’t be bothered doing it for yourself, do it for them.
Maintaining a routine is also a very positive psychological strategy. If you normally work from 8.30 til midday then break for lunch, try to do that at home, too. You might have some interruptions, or you might be sharing a workspace, but it’s a powerful way to model to other people, especially kids, that keeping going in times of adversity is both possible and beneficial. It also keeps the brain trained for returning to work when the time comes, and gives you a great sense of satisfaction of achieving something each day.
Similarly, keeping your home spaces clean and tidy promotes health by not giving the germs a foothold. Do the laundry, wash the dishes, and clean the surfaces regularly. That way, things are easily maintained without turning into hard labour.
Relaxation should be part of every day. Whether it’s reading, crafting, meditation, writing, doing a puzzle or listening to music or a podcast, spend some time each day in quietness and peace. If your kids aren’t good at quietness and peace — and many are not — now is a better time than any to model positive mindfulness and teach them some strategies they can use. They should also be learning to respect your need for some downtime, too. They may be getting frustrated, but it’s actually not all about them.
In keeping with all of this, my own personal strategies include are:
Maintaining my regular morning routine: get up at a reasonable hour, shower, dress, have breakfast, and then get into the things I need to do each day.
Creating an achievable “to-do” list for each day. It helps me organise myself, and ticking things off the list is incredibly satisfying.
Sticking to my usual school timetable as much as possible when I’m working from home. I’m a teacher, so there’s always plenty I can do. I have to take care not to let work consume the entirety of each and every day. A routine helps me to manage that more effectively, and keeps me on task this week as I’m working to get done what I need for the beginning of Term 2.
During the scheduled term break of two weeks leading up to Easter, I need to ensure I have the break I have earned. There will be some school work to do — there always is — but I will not be working the whole time.
Spending time outdoors every day. I can choose to work in our courtyard, spend time in the yard with the dog and talking to the sheep over the fence, or spend time in one of the parks in town. Mixing it up from day to day is how I roll.
Eating properly. The temptation to snack all day is huge, and having dropped a few dress sizes since August, that’s not a habit I want to get back into. I’m shopping strategically – I go only when I need to, and when my resolve is strongly in favour of buying apples rather than chocolate.
Punctuating between activities by drinking a glass of water.
Maintain my regular habit of reading for at least an hour a day.
Self Care At Home During the #CoronavirusLockdown #mentalhealth #HealthandWellbeing #selfcare #Priorities #stayinghome
While many of us are staying in and working from home in the interests of slowing down this drafted virus, there are some important positive things we should all be doing at this time of social distancing and isolation during the time of Covid-19.
The good news is that you don’t even have to leave home to do them.
Some of the positive things we should all be doing include:
Check on your older family members. They are susceptible to loneliness at the best of times, and this is definitely not the best of times.
Check on your extroverted family members and friends. They are probably already a little stir crazy, and it’s nowhere near over yet.
Sincerely thanking everyone you know who works in the health profession, in a supermarket or pharmacy, or who drives a truck delivering the produce and goods that we are all relying on. They are the ones making it possible for us to stay home and stay safe.
Share encouragement, kindness, and support, instead of germs. Wouldn’t it be great if we could make that stuff go viral?
Social media is full of parents who have suddenly found themselves homeschooling their kids and wondering what level of purgatory they have landed in. Now is a great time to send a message of thanks to your kids’ teachers, acknowledging what an incredible job they have been doing.
Take care of yourself. Nutrition, hygiene, exercise, and fresh air and sunshine are all super important.
Sharing great ideas and resources for things to entertain, teach, inspire and motivate. It’s not just kids needing something constructive to do— there are plenty of bored grownups out there, too. Can you imagine how different a place Facebook and Twitter might be if we filled them with cool posts to help each other instead of all the complaints that seem to be there?
When a friend shares something good on their feed, give it a thumbs up or a heart, and share it around. If you enjoyed it, you can bet there’s someone else out there who will benefit from it, too!
Support local small business. Now more than ever, your local stores need your support. When you have to go out and restock the pantry or replace something that has broken, buy local, support your neighbourhood businesses, and keep the community going. It can’t be said often enough: your $50 or $100 won’t actually mean much to a huge multinational company, but it will make an enormous difference to a family business that is endangered in this current economic climate. You’ll help to feed or clothe someone’s kids, or keep the lights on.
These might sound like quite basic ideas, but it’s so easy to lose sight of the forest for the trees when things seem dire. A bit of positivity here and there adds up to a mindset that can completely change your day, or your perspective. Give it a go!
Positive Things We Should All Be Doing While #StayingHome #StayHomeandStaySafe #positive #stayingpositive #PositivePosts
Thursday is my least favourite day of the week, because I have a 3 hour class followed by 3 hours of work (I am a teacher’s assistant for a class I took a few years ago). I am my most awake and happy in the morning, but on Thursdays I have to relax during the morning and try to sleep in (I never end up doing this) and do some self-care so that I’m not totally drained by the time I have to head to school.
Every Thursday morning I wake up with dread because I am genuinely afraid I will end up having paralyzing anxiety, or start a depressive episode, or just plain get so tired I cop out of class and work. In the past, I did – often. When I was still using (I am a recovering addict, if you haven’t read my blog…