Fibro Flares and Self Care

It’s been a rough week, both emotionally and physically. Sleep has been patchy, which isn’t unusual for me, and my back pain has been relentless. 

Naturally, my fibromyalgia decided to join the pain party with some extra bass beats and neon flares of its own. 

Yesterday I chose to work through it. I’m a teacher working from home and my students are depending on me. It’s not that easy for substitute teachers to step into a remote learning classroom and make things happen the way I want them to. And, you know, I didn’t have to drive to school, which helps when you wake up in crushing pain. My classes were great, and spending ninety minutes with Genghis Khan in my Year 8 History class was a good distraction. 

When my classes finished, I had to go to town to pick up my much needed new glasses, I’ve been struggling with eye fatigue while doing so much remote teaching, and it’s fair to say that the curriculum planning and lesson preparation don’t stop just because we’re working off campus. It was a 45 minute drive, but I just went there, got my glasses, and came home. I am not interested in shopping or spending any more time around people than I need to right now. 

When I got home, I rested. Dinner was easy – the soup was already made, and just waiting for us to enjoy it with a spinach and feta bread twist. 

I really hoped the evening of rest would be enough to make the pain flare back off. 

Nope. 

So, by necessity, this weekend has to be a quiet one. 

My new glasses are great, but I’m not going to be spending much time on screen. I’d love to read a book, but my hands hurt too much to hold one for long. 

So, I will do what needs doing, and that’s it. I have a couple of new podcasts to road test, and then I’m going to indulge in an audiobook. I’ve got my recliner, my quilt, my cat, and the sound of rain falling outside.

Choosing my content is important for my mental and emotional wellbeing. I’m taking care to exclude anything negative, so I’m avoiding the news and social media. Throughout the whole Covid-19 pandemic and working from home experience, I have found that to be a good strategy for keeping my mental and physical spaces positive and healthy.

I’ve also got my pain medications handy in the drawer just beside me, because those things are my friends. It’s all well and good to be idealistic about managing pain and not relying on drugs, but on flare-up days, there is absolutely zero chance of that happening. A girl has to do what a girl has to do. 

I have good coffee and plenty of water on hand. And, at some point, I’m going to have one or two of those fabulous cookies from the care package I received in the mail yesterday.

So, here’s to a quiet weekend. I’ll be looking after myself, and I hope you are able to do the same.

At least raccoons look cute with dark shadows under their eyes.

And On The Third Night, She Slept

Never underestimate the blessing of sleep!

Two nights of almost zero sleep had left me way beyond forswunk and very near completely useless by Thursday afternoon. 

A frequent flier on Air Insomnia, I have been through this before. I’ve always been a lousy sleeper, and ever since chronic back pain and fibromyalgia became part of my life, they have always been quick to join the party and keep me awake long after I wish to be unconscious.

So, as I have done so many times before, I just kept going. I taught my classes with the same degree of professionalism and confidence that I demonstrate every other day, with the help of only marginally more caffeine than usual. 

Once classes were done and my work for the day was finished, my recliner was my refuge. I put on a podcast and closed my eyes… and still didn’t sleep. Discouraged but comfortable, I just stayed there and rested… like I had a choice. 

A very early night was definitely in order, and I made sure I got one. Still awake at 11pm, I tried not to think about the state I would be in after another sleepless night. That kind of thinking doesn’t help anyone fall asleep, ever. So, I closed my eyes, listened to my regular radio program, and tried to slow my breathing and my thoughts. 

I drifted off at some point after midnight. Seven glorious hours later, I woke up when my alarm went off. 

Such relief! I feel so much more able to do what the day demands and meet any challenges that might come along. 

There is a reason they use sleep deprivation as torture, after all. It can be physically painful and psychologically overwhelming. I’m so thankful for the sleep I got last night, and I certainly hope that particular cycle of insomnia is finished. 

And now, I go once more unto the breach, dear friends. Online classes, lesson planning and my email inbox await me, and I must imitate the action of the tiger. 

Vetiver Oil: A Grass Roots Therapy For Better Sleep

If you suffer with insomnia, or if you have trouble relaxing at night, you might find this post helpful.

An Aussie Maple Leaf, adrift on the wind...

One of my most consistent problems with sleeplessness is that I can be totally exhausted, but still unable to actually drop off to sleep. 

That’s mostly because of my fibromyalgia, but it is complicated by back pain on those nights when my pain relief medication fails to cut the mustard, as it sometimes does.

Because I know from past experience that prescription sleeping medication causes my whole system to lag, and because of the strong pain killers I need to take for my back as well as my fibro, I feel very strongly about not having those other drugs in my regime.

So,I recently visited my friendly local alternative health practitioner and asked, “What can you suggest to help me sleep?”

She suggested Vetiver Oil, diluted in fractionated coconut oil. The instructions say to apply it under both big toes and to the wrists, to inhale deeply on going to…

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How can insomnia be a good thing?

This post struck a chord with me. I hate my insomnia, but because of it, I have written some incredible poetry at 3am.

I do try to manage it, and to practise good sleep hygiene, but sometimes my pain levels and my brain conspire against me.

On those night when I am not able to write, I find listening to talkback radio, a podcast or an audiobook helps me to relax and and least rest while I am awake.

I’d love to know what works for you.

Fibromyalgia Explained.

Since I began posting about my experiences of Fibromyalgia, a number of friends have asked me to explain what it is. I always start with “I can really only tell you what it’s like for me…” 

I was recently introduced to a video by Dr Andrea Furlan, a pain specialist from Toronto, in which she explains the symptoms, possible causes and treatments for Fibromyalgia far better than I ever could. While some GPS are still fairly dismissive of this disease, Dr Furlan explains with empathy and understanding of both the physical and mental effects of Fibromyalgia on those who endure it.

Even though everyone experiences it a bit differently, it felt as though she spent most of the time actually talking about me. This tells me two things: she really knows what she is talking about, and she is a very good communicator. 

So, if you want to know more about Fibromyalgia, take the time to watch this video and find out why the people you know with this condition I find it so debilitating.

How to Stay Motivated in Spite of Mental Health Concerns

There are some fabulous tips here for staying motivated despite the things that try to drag us down.
I found this post hugely relatable, and also got some great new ideas from it.

Plus, on an entirely different note, like this blogger, I also have a calico cat. Her name is Scout – after the central character in To Kill A Mockingbird – and she is divine.

Scout Kitty may have gotten her nose out of joint when I featured Abbey the Labby in yesterday’s post, so this was a good opportunity to make it up to her.

Two Girls and a Calico Cat

Hi lovely readers,

Thursday is my least favourite day of the week, because I have a 3 hour class followed by 3 hours of work (I am a teacher’s assistant for a class I took a few years ago). I am my most awake and happy in the morning, but on Thursdays I have to relax during the morning and try to sleep in (I never end up doing this) and do some self-care so that I’m not totally drained by the time I have to head to school.

Every Thursday morning I wake up with dread because I am genuinely afraid I will end up having paralyzing anxiety, or start a depressive episode, or just plain get so tired I cop out of class and work. In the past, I did – often. When I was still using (I am a recovering addict, if you haven’t read my blog…

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Things I Am Thankful For Tonight

After two ridiculously hot days –40C or 104F–and a busy first week of the school year, my fibromyalgia pain is going nuts.

It’s currently 11.35pm and still warm out, even though a cool change came through a few hours ago and dropped the temperature by ten degrees in as many minutes. It’s also pouring rain – and I’m not going to complain about that!

I am lying in bed listening to the rain, hoping my pain meds will work quickly, and trying to focus on positive things instead of feeling miserable.

So, in no particular order, here is my list of things I am thankful for tonight:

  • Pain medication
  • Ceiling fans
  • Cool changes
  • Rain
  • Three seasons other than summer
  • My bed
  • Total adoration from Abbey the Labby
Abbey the Labby: so clever, she’s on Facebook.

Painsomnia and sleep deprivation

The term ‘painsomnia’ is perfect for describing the impact of chronic pain on the sleep patterns of those who live with conditions like Fibromyalgia.

This post touches on so many aspects of my life with both Fibromyalgia and back pain.

I’m thankful to The Brainless Blogger for writing so clearly and honestly what many people struggle to explain.

If someone you know has a chronic pain condition, you need to read this and share it with everyone you know.

Brainless Blogger

So I’m going to start with this tidbit: The brain literally starts eating itself when it doesn’t get enough sleep.

AHHHhhhhhh!!!!!!! My brain is EATING itself. WTAF!

Not cool.

Painsomnia and sleep deprivation

Other issues with sleep deprivation can include:

  1. Impacts short-term and long-term memory
  2. Concentration becomes impaired along with problem-solving abilities and even creativity
  3. Mood instability- obviously lack of sleep can make a person cranky as all hell. But long term it can be comorbid with anxiety and depression and make depression more intense
  4. Less than 5 hours a night can cause your blood pressure to increase
  5. It increases your risk for Type 2 Diabetes
  6. It increases the risk of heart disease
  7. It can lead to poor balance and increase the likelihood of falls
  8. Affects immune system and it may take you longer to recover from illness
  9. Increases the chances of obesity (source: Healthline)

And if that were not enough there is…

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Appreciate the Gifts and Differences

I can relate to the feelings of inadequacy expressed by this blogger on so many levels: as a teacher, a writer, and as someone who has had to adjust to living with chronic pain and illness.

I can’t do all the things I used to do so easily. My motivation to make things perfect creates perpetual conflict with my physical inability to achieve that.

And yet, thankfully, there is still much that I can do.

This post is a great reminder of the importance of doing things, rather than doing them perfectly, and of being present and engaged in the lives ofour family and friends. Thus, I repost it with heartfelt thanks to C.J. Langer for the very timely thoughts.

c.j. langer

IMG_20191127_0553Perfectionism rears its ugly head at the weirdest times. At least for me. I have tried very hard for the last 15 years or so to let that part of me go. I know striving for perfection can only lead to frustration and, in severe cases, depression. At the very least it can lead to an increase of anxiety and stress.

But as hard as I try, I find myself thinking bad about what I do when something doesn’t turn out the way I think it should. You know, perfect. I tend to compare my work to what others do and become embarrassed about giving others sub par work.

In this instance, it was my wrapping skills. I’ve known how to wrap a present since I was a kid. It was something my mother knew how to do exceptionally well so she taught me how to do it too. It’s…

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How To Not Make Someone Feel Worse Than They Already Do

Despite having worked hard, going more than one “extra mile” and achieving some good things, I have spent much of the past  few days feeling absolutely, irretrievably inferior. Totally sub-standard. An awful disappointment.

It’s not a new experience, by any stretch of the imagination. It happens far more often than most people will ever know or realise. Even so, it is never pleasant feeling as though most of the world thinks you’re rubbish. 

It’s not as though any of us is perfect. I certainly make no claim to be… which is a good thing because I am most definitely not.

And yet, when others discover a flaw or weakness, or find I have made a mistake, they very often speak or act as though they feel they have a right to be outraged and judge me for my imperfection. 

So here’s a news flash. 

I am not perfect. 
Neither are you. 
Everyone makes mistakes. 
Everyone misses a beat every now and then. 

But you know what is more hurtful than someone making a mistake? 
Treating them as though they are less than you. 

Because, you know, they’re not. 

If someone does something that bothers you, or offends you, and you feel the need to talk to them about it, for goodness’ sake, be kind. And if you can’t be kind, then wait until you can. 

And please, please, oh please, go to them and speak to them rather than anyone else. Going behind their back and kvetching about it is only ever going to cause more complications and trouble, so unless that is your actual intent, it is a response that should be avoided.

Similarly, there is nothing achieved by being judgemental. In fact, it is entirely counterproductive. 

Sure, they might comply with what you ask or insist of them. But they might do that if you simply asked them to do something to resolve the issue, too— especially if you ask nicely and say please.

The saying that “you get more out of people with honey than you do with a stick” became a proverb for a reason: it is generally true. It is certainly true of how I respond to people. 

If someone treats me with kindness, I will do everything in my power to not let them down. 
If they dump judgement on me, I am just going to keep on beating myself up over it, because if someone tells me I am not good enough, I will believe them. I will also probably never again fully believe that they have any respect for me at all. 

And if someone else, completely unknown to them and in different circumstances, tells me the same thing, I will believe both of them, twice as hard and twice as long. 

It’s not deliberate, and it doesn’t matter if that is not your intention: that’s how I am wired. 

The consequence is that it makes everything I need to do in a day more difficult. I doubt myself and second guess everything, even the things I know I am good at. 

To be honest, life is actually hard enough without that. It’s bad enough knowing that I made the mistake in the first place, or that someone resents me for not measuring up to their standards. Add chronic pain, anxiety and depression into the mix, and it very quickly becomes both exhausting and excruciating. 

It’s almost certain that that doesn’t just apply to me, either. Many people have internal battles or burdens of one kind or another that they keep hidden, but which add another level of complexity to whatever else they have to deal with in a day. 

So when someone screws up— and we should all understand that everyone will, from time to to time— be kind. Tell them gently, person to person, and let them fix it, or at least try to. 

Please. And thank you.