I, too, suffer from chronic, invisible illnesses.
I have fibromyalgia. I have a permanent back injury. I have depression and anxiety, and I work hard to keep those under control. I strive to take good care of myself, and to manage my conditions. I avoid aggravating them. I also make every possible effort to stay positive and to do the things in life that I enjoy doing.
The fact is, though, no matter what good care I take care of myself or how positive and proactive I am, I cannot heal or cast off my invisible disabilities.
The debilitation is real.
The exhaustion is real.
The misconceptions are real.
And the judgement? Many people would not be willing to believe how real, and how consistent, and how very, very toxic that is.
The critics are only right about one thing: I don’t look sick.
That’s because I’ve been faking being well for years.
This year Invisible Disability Awareness Week falls on October 18th to 24th.
According to the Invisible Disabilities Association, the term invisible disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunction, brain injuries, learning differences, mental health disorders, as well as hearing and visual impairments. They are not always obvious to the onlooker, but can sometimes or always limit daily activities range from mild challenges to severe limitations and vary from person to person
Because Invisible Disabilities are not visible to the eye it can cause issues. Some of these issues are judgments when we use disabled parking or disabled bathroom stalls and others feel the need to make an issue out of it… because we do not Look disabled.
1994-1995 Survey of Income and Program Participation (SIPP) found that 26 million Americans (almost 1 in 10) have a severe disability, while only…
The Australian federal and state governments are, like those all over the world, currently considering how to phase the country out of strict social isolation and start getting back to business. All we know for sure at this point is that it will happen in stages, with the strictest rules being relaxed first. Each state will decide when to implement each stage.
As states roll back some of the social restrictions we’ve been living under, there are a few key things we must all remember.
Easing restrictions doesn’t mean the virus is gone. It means that the levels of infection in the community are low enough that the hospitals will have capacity for anyone sick enough to need a bed and a ventilator.
We will still have to socially distance for the foreseeable future. That’s probably not an entirely bad thing.
Hygiene will still matter. In fact, hygiene has always mattered. I have often marvelled that is 2020, despite how sophisticated and advanced we may think we are, it has been necessary to tell people to wash their hands and not to cough or spit on people.
People matter more than convenience or entertainment. Some of us might be itching to get out to the football, the pub, or the cinema. Others just want to not get sick. Restrictions are being lifted in stages to balance so that the interests and priorities of both groups, so it’s important to still follow any rules that remain in place.
Some people have thrived while working or learning from home. The opposite is also true. All those extroverts who are dead keen to get back to “normal” need to realise that any anxiety they have felt while having to stay home was actually a very real case of the shoe being on the other foot. Introverts and people who suffer from social or workplace anxiety had had something of a reprieve over the past few months and might be dreading work or school going back to the way it used to be.
Patience and consideration of others are crucial life skills for everyone. Even when the need for isolation has completely passed, we all need to be understanding of how others feel.
What Rolling Back #isolation #restrictions Means. #StayHomeStaySafe #BeKind #SocialDistancing
I get it. We’re at home, our kids are home, we can’t go anywhere, so let’s stay in our pyjamas all day! Right?
When everything else in the world is in limbo and the rules are changing on a weekly — or daily — basis, it’s really important for our health to keep some kind of routine and not let the basics fall by the wayside.
Nutrition matters. It’s tempting to live on pizza, chocolate and peanut butter sandwiches, but being sure we eat well and nourish our bodies properly is crucial to maintaining good health. The healthier we are, the more resistant we are to germs of any kind, and the recovery from any bug we might pick up will be quicker. Not only that, but we’re going to have to go back to work sooner or later, and it would be good if those business suits or uniforms still fit when that time comes.
Hydration is also crucial to keeping the body healthy, but most of us don’t drink as much water as we should. It was only when I started keeping track of how much I was drinking in a day that I realised how far short I had fallen from what my body actually needed on a daily basis. Remember, too, that alcohol is a diuretic, so for every beer or glass of wine, we need to drink more water. For a great discussion on how much water we need to drink, listen to this interview from ABC Australia.
Exercise is similarly important, and for more reasons than just not bulking out while we’re hibernating. Exercise is good for the brain and the emotions as well as the body, so even when we can’t leave home, it’s important to walk, or get on the treadmill, toss a ball with the dog, follow a cardio or dance video tutorial, or get into stretching and yoga. Even cleaning out a cupboard or doing some gardening qualifies. There are lots of options for people to pursue at home, and your exercise can be as gentle or vigorous as you want it to be so there’s no excuse for staying in bed or living on the couch for the foreseeable future.
While it has been widely publicised that sunlight will kill the corona virus doesn’t like the sunlight, that is not actually true. Even so, it dos kill other germs and bacteria. Stepping outside the house and into the fresh air and sunshine is highly beneficial for wellbeing. You don’t have to go far – just into the yard will do if you can’t or don’t want to go any further. While people who live outside the city are at a definite advantage here, most neighbourhoods have parks, gardens or reserves where you can go and walk without being in close proximity to anyone else or even touching anything. Letting light into your house is important, too. it helps you maintain a natural circadian rhythm, and therefore promotes better sleep hygiene.
Personal hygiene may seem mundane, and there are probably people out there who are treating it as optional, but showering every day, wearing deodorant, and taking care with presentation is an important part of taking on each day with a positive attitude. It’s psychologically proactive and It makes a difference to our physical health and wellbeing. Just as importantly, it makes you much more pleasant to be around. You might just be at home with your family, but they are actually the most significant people in your life. If you couldn’t be bothered doing it for yourself, do it for them.
Maintaining a routine is also a very positive psychological strategy. If you normally work from 8.30 til midday then break for lunch, try to do that at home, too. You might have some interruptions, or you might be sharing a workspace, but it’s a powerful way to model to other people, especially kids, that keeping going in times of adversity is both possible and beneficial. It also keeps the brain trained for returning to work when the time comes, and gives you a great sense of satisfaction of achieving something each day.
Similarly, keeping your home spaces clean and tidy promotes health by not giving the germs a foothold. Do the laundry, wash the dishes, and clean the surfaces regularly. That way, things are easily maintained without turning into hard labour.
Relaxation should be part of every day. Whether it’s reading, crafting, meditation, writing, doing a puzzle or listening to music or a podcast, spend some time each day in quietness and peace. If your kids aren’t good at quietness and peace — and many are not — now is a better time than any to model positive mindfulness and teach them some strategies they can use. They should also be learning to respect your need for some downtime, too. They may be getting frustrated, but it’s actually not all about them.
In keeping with all of this, my own personal strategies include are:
Maintaining my regular morning routine: get up at a reasonable hour, shower, dress, have breakfast, and then get into the things I need to do each day.
Creating an achievable “to-do” list for each day. It helps me organise myself, and ticking things off the list is incredibly satisfying.
Sticking to my usual school timetable as much as possible when I’m working from home. I’m a teacher, so there’s always plenty I can do. I have to take care not to let work consume the entirety of each and every day. A routine helps me to manage that more effectively, and keeps me on task this week as I’m working to get done what I need for the beginning of Term 2.
During the scheduled term break of two weeks leading up to Easter, I need to ensure I have the break I have earned. There will be some school work to do — there always is — but I will not be working the whole time.
Spending time outdoors every day. I can choose to work in our courtyard, spend time in the yard with the dog and talking to the sheep over the fence, or spend time in one of the parks in town. Mixing it up from day to day is how I roll.
Eating properly. The temptation to snack all day is huge, and having dropped a few dress sizes since August, that’s not a habit I want to get back into. I’m shopping strategically – I go only when I need to, and when my resolve is strongly in favour of buying apples rather than chocolate.
Punctuating between activities by drinking a glass of water.
Maintain my regular habit of reading for at least an hour a day.
Self Care At Home During the #CoronavirusLockdown #mentalhealth #HealthandWellbeing #selfcare #Priorities #stayinghome
During any crisis, be it war, fire, flood, famine or pestilence, it’s important to stay up to date with important information, but it’s also really easy to be overloaded by non-stop discussion and bombardment by both media and social channels.
In recent weeks, it seems that every time one turns the radio on or watches anything on commercial television, the only thing anyone talks about is corona virus related. It’s relentless. Government officials, scientists, medical authorities, celebrities, talk shows, podcasts, and current affairs specials are all contributing to the conversations, with varying degrees of accuracy and relevance. Every news bulletin tells us how many people have been diagnosed and how many have died.
It would be quite possible to consume media about global developments, self isolation, quarantine, and empty supermarket shelves all day, every day— and there are probably people doing that.
That’s not healthy.
It very quickly becomes emotionally and mentally overwhelming , and can blow out into quite disproportionate fear and paranoia.
We are all as susceptible to that as anyone else, so it is important to strike a balance between keeping abreast of what we need to know and limiting the amount of constant discussion about the virus that we allow into each day.
My strategies and decisions for achieving this include:
Being very selective about where I get my news and information. Each day, I inform myself via reputable and balanced news services. Then I turn my focus to other things.
Choosing to deliberately reject “fear language” and negativity, because that doesn’t help anyone.
Being discerning about the content of social media feeds, and how much time is spent reading them. Keep in mind that social media is very rarely one of those reputable and balanced news services. There’s a lot of misinformation out there. The “mute” functionality is very useful in those circumstances.
Adopting an “only positive” approach to sharing and promoting other people’s content. If it’s encouraging, entertaining and constructive, share away. Spread that stuff around like a five year old sprinkles glitter.
Occupying our thoughts with productive and proactive things. Whether that is work, recreational, or creating positive content for our own social media depends on the needs and demands of each day.
Balancing the amount of screen time in each day with screen-free time. Especially in these times of social distancing, it’s vital to ensure that healthy habits are maintained. Go for a walk, enjoy some sunshine or look at the night sky, prepare and enjoy good food, talk with family and friends, dance to a favourite tune or two, read a book, play with the dog, clean out a cupboard or pull some weeds in the garden… the possibilities are myriad.
Keeping things in perspective. Yes, there is a global health crisis making many people sick and curtailing personal and social freedoms. People are losing jobs and businesses as a result. The economy is wallowing. It is a very serious situation. At the same time, most of us are simply being asked to stay home and find ways to entertain ourselves. It might be inconvenient, and we might have to abandon or change plans, but it is still a much better option than what some people are facing.
Supporting local community. When you do need to buy things, try to invest in local and small businesses so that they can survive the crisis, too. This can help you to develop a sense of connection and belonging that is as encouraging for you as it is for the folk you support. An additional benefit is that many small businesses are currently offering contactless shopping and delivery options at no extra expense, and the quality of the goods and services they offer often far surpasses their bigger competitors.
We can’t control the virus, but we can control our own responses to the disruption and social climate it has created. By being proactive about keeping informed and staying positive, we can avoid being overwhelmed by the volume of discussion and the fear and negativity that can so easily take hold as a result.
Staying informed without getting overwhelmed during the #Coronavirus #pandemic #perspective #mentalwellbeing #blogpost
I really appreciate the small, simple things in life that let me know I’m appreciated: a smile, a hug, an encouraging text message or a silly SnapChat. It changes my day knowing that someone cares enough about me to share those things with me.
I was reminded again by Karen Nimmo’s blog post on Nerdome how important that is. In this world where some people will sell you just as quickly as looking at you, or push you under the bus if it means they’ll achieve their goals faster, there are some people who have no positive interactions with other people all day.
My smile might be the only one they see. My words of encouragement might be the only ones they hear. My random act of kindness might be the only light in a dark day.
Because I know what dark days are like, I understand the privilege — and the responsibility — of being able to change that for someone else.
It doesn’t have to cost anything at all. It isn’t an obligation.
It does require us to take our focus off ourselves for a few seconds and give something intangible, yet priceless, to another person.
I hope that my words here, and those of Karen Nimmo, encourage you to seek to make a difference in someone else’s day today. You never know – you might just make your own at the same time.
hink of the last time someone did something nice for you.
Not something big; just a small act of kindness — bought you a coffee or a treat, did a household chore for you before you’ve asked, asked how your weekend was (and genuinely listened to the answer).
Recall for a minute how that made you feel. Good, right? It’s not so much the act that creates the warmth; it’s that they were thinking of you, that they found the time and means to appreciate you, to ease your load or make you smile.
The world can be a dog-eat-dog place; often, we find ourselves competing to get what we want and need. But trampling over others for our own agendas doesn’t make us feel good. Quite the opposite, actually.
One of the best ways to boost happiness is to do something for someone else. Their…
I was saddened to read what happened to Sharon Cathcart the other day in response to a blog post about racism. Nobody should have to put up with another person’s bad behaviour simply because they are standing up for what is right.
Sadly, there can be no doubt that racism and white supremacy are still living and active in our world.
We see their outworking on the news, on the streets, on social media, and in the actions of hateful people. It can be public or private. It can be overt or concealed.
It seems the only thing it cannot be is eradicated.
I do try, in my own sphere of influence, to teach and challenge others to embrace equality, acceptance, and empathy for what others have endured, and what is still experienced by many.
I try to make people aware of what white privilege is, and why it’s wrong to perpetuate it. Yes, I’m fully aware that I’ve been a beneficiary of it all my life. I’ve had advantages others haven’t, simply because I’m white. That doesn’t mean I am willing to sit back and allow it to perpetuate.
This is why I teach my students about the effects of European settlement of Australia on the indigenous people, then and now. It’s why I teach my students about segregation, oppression, and the Civil Rights Movement, and have them listen and respond to speeches by Martin Luther King Jr and JFK. It’s why I thave them study texts such as ‘To Kill A Mockingbird’, ‘Rabbit Proof Fence’ and ‘No Sugar’. It’s why I teach about inequality, wellbeing, and social justice. And I make sure they understand that for everything that has happened in the USA, Australia’s track record is no better.
It’s why I challenge people who tell racial jokes, or call people names, or avoid people who don’t fit their ideal.
It’s why I object to the way in which my country continues to detain people who are legitimately seeking asylum on small third-world islands nearby. It’s why I object to policies and practices that continue to discriminate against indigenous Australians.
And it’s why I write blog posts like this.
I do not ever claim to be perfect, but I detest prejudice, discrimination, and everything that goes with them. It’s not just about race: nobody should be excluded, abused or marginalised for being different in whatever way.
I, too, have had hateful messages left on a blog post or three. I know they are intended to upset me, and to deter me from posting something similar again.
Sadly for those responsible, it has the opposite effect. I always figure that if someone is vehement enough to threaten or abuse me over something I have written, I have probably touched a nerve that deserved touching. As my grandfather used to say, “If you throw a stone at a pack of dogs, the one it hits will yelp the loudest.”
He was a wise man, my grandfather. That statement was never made about actual rocks, nor about actual dogs. It was invariably made about bullies, and various other sorts of horrible people, and the way they would always lash out or blame someone else in response to any accusation or opposition directed at them.
That’s the same reason people leave nasty messages on blogs and social media. They resent the fact that someone is calling them out on their hate.
It’s okay for them to say what they want, though. They have rights, you know.
I was coming back here to write about something else, and found that I had a threatening e-mail (via my contact page) and comment (permanently deleted) from a white supremacist in reference to the link I shared about the 16th Street Baptist Church bombing. Suffice it to say that this individual now has the rare distinction of having been blocked.
This is what white supremacy looks like: threatening anyone who dares to show support for people of color, or to speak out about what happens to them.
And that is actually what I came here to write about. When my dad died, I mentioned that he had given away the bride when one of his African-American students, Joe, married a white woman. Her own family refused to attend.
Anyway, we tried very hard to find Joe in time for Daddy’s funeral. The number my mother had was disconnected, and the…
Lucy Mitchell’s experiences, as she describes in the article reblogged here, are not uncommon. Many writers, artists and musicians use their creativity to help process and deal with their mental health issues.
I share this author’s experience of gaining motivation, encouragement and purpose from writing and self-publishing my works.
Withdrawing my first book from its publisher and taking control of my publishing journey as an Indie author was incredibly empowering. Producing not just good writing but excellent books has been as source of both pleasure and pride for me, but it has also been fabulous therapy.
Every poem I write, whether it’s about mental health or a medieval princess saving herself and taking control of her destiny is evidence of my strength and resilience, even at those times when I am not feeling particularly strong or resilient.
The fact that I can write about my own mental health in a way that others relate to and find powerful is both liberating and encouraging. And every time I kill someone fictionally, it saves me bail money and keeps me out of jail because I haven’t actually laid hands on anyone. That’s a system that has worked extremely well for me so far, so I will stick with it.
Every book I have published is testimony to my survival. This is, perhaps, most true of A Poet’s Curse, which was written indirect response to evil behaviour and nasty people. Publishing that little volume, to which I like to refer as my “dark little book of hateful poetry” really felt like I was taking my life back from those who tried to destroy me, and I celebrated it as such.
At this point of my writing and publishing career, I can say that I am incredibly proud of what I have achieved. That in itself is positive and motivating, and encourages me to keep going. There are still a lot of ideas bubbling away, and there’s life in the old girl yet.
And where there’s life, there’s hope.
All of this is proof of how far I have come from those very dark times that almost destroyed me, and of my determination to never go back.
I hope you appreciate and enjoy the insights from Lucy Mitchell as much as I did.