Can’t Sit… Still

My back has been giving me grief the past few days. Today, though, it has been plain nasty.

This meme was shamelessly borrowed from the Internet. I don’t know who created it.

By the last lesson of the day, the spasms were so bad it was all I could do not to cry in front of my students. Then, as soon as most of the students had left the building, I started the slow, painful walk to my car.

Getting home was a relief. The process of lying down was no fun, and it still took some time for the spasms to ease.

So how did I get to be in such a bad way? I sat down at work for more than fifteen minutes. Sadly, that’s all it takes.

Since my spinal surgery last October, Sitting has been a huge issue for me. I can walk, I can even manage stairs, which I had really struggled with for a few years prior to that. But if I sit on a regular chair for any period of time, I am in pain. The more tired I am, the worse it is.

So, the only sitting I tend to do these days is in the car on the way to and from work. That, too, can be exhausting.

My current physiotherapist insists that it’s just my brain telling me my back might hurt.

I disagree. Those spasms are not the fruit of my subconscious spine having a panic attack. That level of pain is actually my back hurting– and way more than it should.

I’ve been doing the exercises and stretches, and there just doesn’t seem to be any improvement.

So, I’m going to listen to my body and not the physio. Well, not that one, anyway. I’m going back to my former physiotherapist and I’m going back to the doctor, because I can’t keep doing this.

It’s been seven months since my surgery, and I should be able to sit long enough to have dinner or do some work without suffering for it by now.

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Attention: Facebook

Due to recent trends, my algorithm has been realigned.

You may notice that your invitations to boost my posts or create advertisements will receive zero attention. Some may be marked as spam due to lower perceived relevance to the audience. 

If you won’t show my posts to the people who do follow me, I most certainly will not be paying you to show them to people who don’t. 

Because, as you say so often yourself, “it’s all about engagement”. 

Fortunately for the rest of us, there are other places to “engage”, too. 
Are you aware that Twitter neither suppress nor hides anything I post? As soon as it’s sent, BAM, it’s out there for the whole Twitverse to see.

We’re you aware that WordPress allows me to use tags, categories and SEO to make my posts available beyond those who already follow my blog? And they do it free of charge. Ingenious, no?  

I’ll still give you a little attention, Facey. But not as much as you want. And not to help you make money. From what I have heard on the news, you’ve already got quite enough out of people like me. 

The Facebook and Instagram Outage Crisis of March 13th, 2019

Despite the crisis that had unfolded overnight as I slept, I woke this morning to find that the sun had risen, gravity still worked, and the earth continued to turn on its axis. 

I had breakfast, got ready for work, and headed into a very busy day. Surprisingly, I found that the work deadlines and professional requirements that were in place yesterday still existed today. 

My students, however, were despondent. 

Them: Facebook is gone! Instagram doesn’t work! 
Me: Imagine how much work you might get done in the meantime!
Them: You’re not very sympathetic. 
Me: And that surprises you because…?
Them: Rolled eyes and sighs. Some lovely moments of dramatic pathos that I shall try to draw on in drama class. 

This left me wondering: what on earth does the world do without Facebook and Instagram? 
It seems the general response is to complain. 

Many of the real social media junkies responded by rushing over to Twitter to complain and commiserate with their followers and the social media world in general. 

In all honesty, some of the responses are pretty funny. 

Others demonstrate that many people are much worse at dealing with this kind of thing than they should be.  
I mean, really, Australia?
Emergency services?
That’s… pathetic.

This one has to be my favourite. It cuts through the whining and combines the sublime and the ridiculous with glorious snark.
Jenny Bean Edwards gets an A+ for World Studies.

Cheer up, folks.
I’m sure Facebook and Instagram and their enormously profitable algorithms will be back soon.

Until then? You may actually be forced to either read a book or have face-to-face conversations with real people.

Alternatively, you can head to twitter and follow me!

Why Readers Should Be Paying For My Books.

Further to yesterday’s post about illegal book sharing sites, I thought it a good idea to state plainly where my books should— and should not—be found. 

My books are all available on reputable ebook sites: Amazon, Kobo, Barnes & Noble, iTunes, Google Play, and the like. 

They are not legally available anywhere for free. 

As I have openly stated previously, I do not believe in making my books available for free, nor do I accept books for free, because I strongly feel that authors should be paid for their work just like everyone else. 

Creating something excellent takes time, energy, and commitment. When a creator asserts their copyright and other creative rights over their intellectual property, it is their legal prerogative to place a purchase value on that work.

If a work of art, a book, a song or a movie are worth enjoying and owning, they are worth paying for. 

Indeed, I find the concept of someone claiming to be a lover of books, yet avoiding paying for a single one, hypocritical to say the least. 

To prosper by catering to those people? Despicable.

No More Tiptoeing Through The Tulips.

I love tulips. They are lovely and graceful, and so colourful!  

My goodness, though, they’re delicate. It doesn’t take much to make a tulip wilt and bend its head to the ground. One might be tempted to think that a flower that needs to have its bulb frozen during winter in order to bloom might be a little more resilient… but apparently not.

I’ve come to the conclusion that a lot of the people in my circles— not all, but a hefty percentage of them— are like tulips. As long as the environment suits them, they are fine, but when they are unhappy for some reason, they just don’t cope. It doesn’t take much to upset the balance: just do something they find confronting. The more brave and nonconformist the act, the stronger the effect.

Don’t get me wrong: I do like most of the people in my circles. 

What I don’t like is having to kowtow to their apparent discomfort about certain things that matter to me, when they demonstrate zero tolerance to who and what I am. 

I am weary of having to live with the perpetual awareness that many people I know don’t mind me being an author as long as I never mention it. Some wouldn’t mind my multiple ear piercings either if I grew my hair longer to cover them. Others don’t mind my tattoos as long as my clothes hide them. They feign politeness when I talk about the theatre company I’m in or the musicals I direct at school, but very few of them have ever bought a ticket and come to see a show. And let’s not even start on how they feel about my political views. 

And yes. Those very different things get exactly the same reaction from a lot of people.

It’s ridiculous, and I’m over it. 

I am not less than them. 
I do not matter less than they do. 
My feelings, thoughts, passions and pursuits matter just as much as theirs do. 
I am as worthy of their interest and respect as they are of mine.

And I am very proud of my poetry and my stories… and of my shows. I’m rather fond of my tattoos and piercings too, for that matter. 

What I write happens to be pretty darned good: all those reviews my books receive from strangers are proof of that. Why should I hide my work under a cloak of secrecy when they can freely discuss being a builder, a butcher, a baker or a candlestick maker?

Nobody looks at them with thinly veiled suspicion. Nobody questions if what they build or make is any good. Nobody asks how much money they make per job. Nobody asks if their kids are real, or if they are any good. 
They are all quite free and welcome to talk about their kids in front of me even though I don’t have any, and I certainly don’t respond as though they are trying to sell me a child.

So, no more tiptoeing around. I won’t be shoving a book in their face at every opportunity — that’s not me — but I’m not going to allow others to pretend they don’t exist, either. They don’t have to read my work, but they will know that I expect their respect and acknowledgment.

I will not allow other people to treat me as less than I am.

I will not allow them to suppress my thoughts and feelings. 
I will call people out on double standards. 
I will refuse to be made to feel small.
I will be as diplomatic and gentle as I can, but I will assert myself.

And if they insist, I will know they are not really my people, and were never really in my circle.

Current Status: Freaky.

Today’s ‘strange but true’ happening.

Having a song running in  my head isn’t unusual.  My BrainPod, as we lovingly refer to it, is easily and frequently triggered by events, words, or sights. It can change in a flash and ts usually easy to switch tracks if a song starts to annoy me. 

What was unusual about today is that I had no idea why that song was playing. It’s not a song I have ever particularly liked, especially since it makes no sense that Running Bear and Little White Dove would jump into the raging river and die together instead of just nicking off to the nearest bridge and eloping.  I hadn’t seen any running bears or any little white doves,  or had I been watching anything with Native Americans in it. I put it down to being one of those hinky things that happens sometimes, and got on with my day. 

Despite my best efforts, Running Bear has been playing on a loop in my head all day. I’ve tried to change it by singing some of my go-to “sticky tunes” that usually do the trick for me. I’ve listened to other music. 

On an impulse, I went for a drive to the coast with my husband this afternoon.He had a call out to replace a TV antenna, and a 40 minute drive each way seemed like a good opportunity to spend some time together before school starts again next week. I also figured that listening to something inane on his preferred trashy pop radio station – which normally bugs me a whole lot – would fix it for sure. 

He pulled up at the house where he had to replace the TV antenna. As he got out of the car, we heard music playing loudly from the house across the street. 

“Running Bear loved Little White Dove
With a love big as the sky,
Running Bear loved Little White Dove
With a love that wouldn’t die.”

A chill crept across the back of my shoulders and my pulse sped up just enough for me to be aware of it doing so.

I know I am an empath, but this is different. Maybe it’s because I write horror that it seems creepier than it is. I’d like to think it’s just random coincidence, but you may consider me completely weirded out. 

Catching The Train.

Today, I caught a train to Melbourne. Perhaps I should have thought about that a little more.

Today I caught a train into Melbourne for an appointment tomorrow. 

That doesn’t sound like a big deal, but.. ouch. 

I didn’t even think about only being seven weeks post-surgery when I got on the train.  I probably should have done, though. 

Here’s the thing. A country rail journey here is bumpier than a car trip and the jostling is constant. You can’t adjust the seat or change your position, so it is what it is. 

The great thing was that my travelling companions were a. people I know well, b. very helpful and c. not actually able to walk much faster than me, so apart from the jiggling it was quite a good trip. 

By the time we arrived at Southern Cross Station in Melbourne, my back was feeling very tender indeed. It was great to get off the train and walk for a bit, which helps to relieve the inflammation and get the circulation going again. 

I also really like this railway station. Melbourne has two iconic stations: Flinders Street Station is old and beautiful, while Southern Cross is funky and cool with its sleek designs and wavy roof. I find it hard not to look up at that roof and think, “That’s SO cool!” 

From the station, it was only a short cab ride to the hotel. Now that I am lying down in my hotel room and have had some ibuprofen, I feel quite okay, so no harm done. 

Progress!

I’m feeling positive about the progress I am making.

Now that I am making more progress in my recovery from my spinal surgery and I am moving a little more freely, I’ve decided to be more deliberate and purposeful about starting to retrain my muscles and building up some stamina for both my body and my mind.

Today I got out some pencils and a book, and started colouring, which is always something that makes me happy and peaceful. It’s also something I can do standing at the kitchen bench. I don’t have to do it all at once – it’s something I can do, and leave, and go back to through the day.

Like me, it’s neither perfect nor finished, but it’s on the way.

It may not seem like much, but getting this much done is a big achievement for me. I have been largely horizontal and only walking fairly short distances -although frequently – since the surgery on my spine on October 19.

Since my last update on my recovery, the first lot of bruising has faded to a dull shadow and the deeper bruising has begun to come to the surface now, so I am still all the colours of the rainbow, but the pain is less intense and more manageable now. I’ve ventured out of the house and walked around the yard, and begun to do light things around the house like folding laundry and doing dishes. Things that exhausted me at first are easier now, which is really encouraging. I have, however, learned the hard way that I am not ready for cutting pumpkin (it was just a little bit of butternut) or bending to get things out of low places. You don’t know until you try, right? Suffice to say that dinner on Monday was delicious, but I paid for it on Monday night and yesterday. The aggravation has settled now, though, much to my relief.

Sitting for any length of time is still an issue: I’m currently managing about ten minutes at a time before I have had enough. That means I will have to be ready to stand up most of the day when I go back to work in a couple of weeks. I will have exams to mark and papers to grade, so this seems like a good way to begin to prepare for that sort of thing. I can gradually build up to standing for longer periods of time without feeling any pressure to “perform”.

I also plan to start walking a bit further than I have been, especially now that I am a bit more confident and steady on my feet.

I fully understand that healing and recovery can’t be rushed, but I think that small progress in these ways will only help me to get stronger. And when I have had enough each time, my bed or my recliner will still be here waiting for me.

Today I am feeling positive and encouraged, which is also helpful to my healing and easier to live with all round.

Current Status: Not Ready For Adulting

Today, I ventured beyond home for the first time since coming home after surgery.

I had to go out today. There was sunshine. There were people. It was traumatic.

My driver’s license expires on Thursday, so my husband agreed to take me to the next town where I could get the photo taken, sign the form, and give a chunk of my cash to the government for a new one.

I did my hair, put on real clothes instead of pyjamas, and put on some makeup.
I thought I was doing okay for someone recovering from surgery, so I sent a snap to my best friend.

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Naturally, she was both encouraging and completely understanding of why I made the extra effort. She is consistently awesome like that.

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Let’s face it, you don’t want to be thinking “Oh yeah, that was that month where I spent two weeks nearly dying from a mystery chest infection and then ended up having spinal surgery after screaming non-stop for four days!” every time you look at your license photo for the next ten years, do you?

The drive to Camperdown wasn’t too bad. I had the seat reclined a fair way because I still can’t sit comfortably for more than about eight minutes, and my husband was pretty good at missing the worst of the bumps.

I walked from the car to the shire offices without too much trouble. I didn’t have to wait long, thankfully, and everything went smoothly so that the license renewal was taken care of in just a few minutes.

Then my husband suggested we call at the supermarket to pick up something for dinner. My approach to grocery shopping is quite pragmatic: get in, get what you need, and get out. I thought I could handle that, even at this stage of my recovery.

Of course, it’s never that simple when you really need it to be. I wasn’t two meters through the door of the store when an acquaintance stopped me for a chat. I had the cart to hold onto – what a clever disguise for an disability support walker that was! – and it was a very good thing, because just standing there, I could feel myself fading and the sweat breaking out on my skin as I tried to pretend there was nothing wrong. In the end, I told her I had to go and staggered off to find my husband, who had been gathering the things we needed and had his arms full of stuff. We went to find the last couple of things, and that was when he pointed out the Harry Potter Quidditch Match LEGO set.

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That may not seem significant to you, but Harry Potter and LEGO are both big-ticket items in my world. I didn’t have to rationalise anything. It was coming home with me. I left the set with Aragog behind, though, because while Hagrid may love giant spiders, I do not.

We got through the checkout and back to the car, and my lower back where I had the surgery last week was really starting to hurt.

The road seemed longer and much bumpier on the way home than it had on the way there. I was really thankful that I wasn’t sitting upright, and tried not to complain but couldn’t help making those awkward little little grunty noise that you make when something hurts and you try to just grit your teeth but the sound gets out anyway.

When we got home I had to take some ibuprofen and lie down. I didn’t even take a moment first to look at my new LEGO set. And once again, I am writing a blog post on my iPad while lying flat on my back.

The good thing is that my driver’s license is good for another ten years.
The not-so-good thing is that I know I am nowhere near ready to use it.

Realigning My Priorities.

My recovery from spinal surgery demands that my priorities change.

There were so many things I had planned to be doing this week.

As a horror author, promoting my books leading up to Halloween was always going to be a major focus. I had a major promotion and giveaway planned. I had a well crafted social media campaign organised. October was going to be my time.

As a teacher, my classes are continuing even though I am not there. Lessons need to be developed and delivered, and my students have exams coming up.

There are things I need to read and other things I need to write.

None of that is happening.

I am now home from hospital. I am moving and thinking very slowly, and trying to heal after spinal surgery. The local anaesthetic that was embedded in the site of my surgery and in the incision has worn off and I am feeling the reality of what my body has been through. My Fibromyalgia has also joined the pain train today, so while I am trying to wean myself off the fancy pain killers, the motivation to do so is less today than it was yesterday. My eyes don’t want to focus any more than my brain does.

I know this will not last. And I know I must be kind to myself while it does.
The writing, the work and the social media hamster wheel will all be there when things improve.

Yet I can’t help feeling frustrated by my slowness or inability to focus on anything. I am not accustomed to inactivity and my mindset is certainly not one that surrenders to pain. Yet that is exactly where I find myself.

The challenge for me is to accept where I am and be willing to rest instead of letting my frustration push me and ending up with sub-standard results.

The priority for today and the immediate future has to be self-care and self-preservation. My spine demands it. Everything else will just have to wait.

If you would like to encourage or support me, you could

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