Fibromyalgia Explained.

Since I began posting about my experiences of Fibromyalgia, a number of friends have asked me to explain what it is. I always start with “I can really only tell you what it’s like for me…” 

I was recently introduced to a video by Dr Andrea Furlan, a pain specialist from Toronto, in which she explains the symptoms, possible causes and treatments for Fibromyalgia far better than I ever could. While some GPS are still fairly dismissive of this disease, Dr Furlan explains with empathy and understanding of both the physical and mental effects of Fibromyalgia on those who endure it.

Even though everyone experiences it a bit differently, it felt as though she spent most of the time actually talking about me. This tells me two things: she really knows what she is talking about, and she is a very good communicator. 

So, if you want to know more about Fibromyalgia, take the time to watch this video and find out why the people you know with this condition I find it so debilitating.

Painsomnia and sleep deprivation

The term ‘painsomnia’ is perfect for describing the impact of chronic pain on the sleep patterns of those who live with conditions like Fibromyalgia.

This post touches on so many aspects of my life with both Fibromyalgia and back pain.

I’m thankful to The Brainless Blogger for writing so clearly and honestly what many people struggle to explain.

If someone you know has a chronic pain condition, you need to read this and share it with everyone you know.

Brainless Blogger

So I’m going to start with this tidbit: The brain literally starts eating itself when it doesn’t get enough sleep.

AHHHhhhhhh!!!!!!! My brain is EATING itself. WTAF!

Not cool.

Painsomnia and sleep deprivation

Other issues with sleep deprivation can include:

  1. Impacts short-term and long-term memory
  2. Concentration becomes impaired along with problem-solving abilities and even creativity
  3. Mood instability- obviously lack of sleep can make a person cranky as all hell. But long term it can be comorbid with anxiety and depression and make depression more intense
  4. Less than 5 hours a night can cause your blood pressure to increase
  5. It increases your risk for Type 2 Diabetes
  6. It increases the risk of heart disease
  7. It can lead to poor balance and increase the likelihood of falls
  8. Affects immune system and it may take you longer to recover from illness
  9. Increases the chances of obesity (source: Healthline)

And if that were not enough there is…

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One Step Forward, Two Steps Back

There are many things I have learned to do again, albeit differently, since my spinal surgery 15 months ago. 

It seems, however, that stairs are still my nemesis. I can manage one or two steps if I go slowly and carefully but, as I discovered tonight, walking up a whole flight of stairs still causes me significant pain. 

We went out for dinner with friends, who had booked at a first floor restaurant that had no elevator. It did, however, have a beautiful circular staircase. 
Beautiful… and an enormous challenge.

I went very slowly, but by the fifth or sixth stair my lower back was screaming. Before I got to the top, I could feel the sciatic pain in my butt and staring to extend down my legs. I couldn’t stay there, so I had to either keep going or go back down. Slower still, and even more carefully, I made it to the top.

The first thing I did was hit my friends up for whatever analgesics they had. One had ibuprofen, the other had paracetamol. I took both, as my doctors have instructed me to do when I need to. I also chose not to sit until my meal was delivered, even though standing up in a large room of diners made me feel very self-conscious.  

It didn’t help that some people were quite obvious about the way they looked at me – and all I was doing was standing up. Once again, it reminded me of how much harder it must be for those whose differences or disabilities are more obviously noticeable.  

Dinner was delicious, but as soon as I had finished, I stood up again. We took the rear door out of the pub, as it opened onto the driveway. Even through it was quite a slope, it was still easier than the stairs. 

It’s disappointing that the establishment had not been more thoughtful about accessibility. An assumption that everyone who visits is able-bodied enough to use the stairs is ignorant at best. Perhaps if there were a “disabled access” sign pointing to the rear of the building, I might have been able to enjoy my meal and the great company without either kind of discomfort. I cannot imagine I am the only person who would benefit from that, 

And, if you’re ever out for dinner and there’s someone standing up for most of the evening, or doing anything else out of the ordinary, just know they have their reasons and be kind enough to pretend you haven’t noticed.