Tag: spinal surgery recovery

6 Things to know about Invisible Disability Awareness

wordynerdbirdLeave a comment

Everything this post says is true.

I, too, suffer from chronic, invisible illnesses.
I have fibromyalgia. I have a permanent back injury. I have depression and anxiety, and I work hard to keep those under control. I strive to take good care of myself, and to manage my conditions. I avoid aggravating them. I also make every possible effort to stay positive and to do the things in life that I enjoy doing.

The fact is, though, no matter what good care I take care of myself or how positive and proactive I am, I cannot heal or cast off my invisible disabilities.

The debilitation is real.
The exhaustion is real.
The misconceptions are real.

And the judgement? Many people would not be willing to believe how real, and how consistent, and how very, very toxic that is.

The critics are only right about one thing: I don’t look sick.
That’s because I’ve been faking being well for years.

Brainless Blogger

This year Invisible Disability Awareness Week falls on October 18th to 24th.

According to the Invisible Disabilities Association, the term invisible disability refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunction, brain injuries, learning differences, mental health disorders, as well as hearing and visual impairments. They are not always obvious to the onlooker, but can sometimes or always limit daily activities range from mild challenges to severe limitations and vary from person to person

Invisible Disabilities You ShouldKnow

6 Things to know about Invisible Disability Awareness

Unseen

Because Invisible Disabilities are not visible to the eye it can cause issues. Some of these issues are judgments when we use disabled parking or disabled bathroom stalls and others feel the need to make an issue out of it… because we do not Look disabled.

1994-1995 Survey of Income and Program Participation (SIPP) found that 26 million Americans (almost 1 in 10) have a severe disability, while only…

View original post 1,393 more words

One Step Forward, Two Steps Back

wordynerdbirdLeave a comment

There are many things I have learned to do again, albeit differently, since my spinal surgery 15 months ago. 

It seems, however, that stairs are still my nemesis. I can manage one or two steps if I go slowly and carefully but, as I discovered tonight, walking up a whole flight of stairs still causes me significant pain. 

We went out for dinner with friends, who had booked at a first floor restaurant that had no elevator. It did, however, have a beautiful circular staircase. 
Beautiful… and an enormous challenge.

I went very slowly, but by the fifth or sixth stair my lower back was screaming. Before I got to the top, I could feel the sciatic pain in my butt and staring to extend down my legs. I couldn’t stay there, so I had to either keep going or go back down. Slower still, and even more carefully, I made it to the top.

The first thing I did was hit my friends up for whatever analgesics they had. One had ibuprofen, the other had paracetamol. I took both, as my doctors have instructed me to do when I need to. I also chose not to sit until my meal was delivered, even though standing up in a large room of diners made me feel very self-conscious.  

It didn’t help that some people were quite obvious about the way they looked at me – and all I was doing was standing up. Once again, it reminded me of how much harder it must be for those whose differences or disabilities are more obviously noticeable.  

Dinner was delicious, but as soon as I had finished, I stood up again. We took the rear door out of the pub, as it opened onto the driveway. Even through it was quite a slope, it was still easier than the stairs. 

It’s disappointing that the establishment had not been more thoughtful about accessibility. An assumption that everyone who visits is able-bodied enough to use the stairs is ignorant at best. Perhaps if there were a “disabled access” sign pointing to the rear of the building, I might have been able to enjoy my meal and the great company without either kind of discomfort. I cannot imagine I am the only person who would benefit from that, 

And, if you’re ever out for dinner and there’s someone standing up for most of the evening, or doing anything else out of the ordinary, just know they have their reasons and be kind enough to pretend you haven’t noticed.

Why I Love Audiobooks

wordynerdbird29 Comments

I am a relatively recent convert to the audiobook experience. 

Before October last year, I had really only used audiobooks when teaching Shakespeare texts in high school, as it took the stress out of the actual reading for kids who weren’t sure how to approach or pronounce the parts of the language that were unfamiliar to them.  Beyond that, i had suggested them for people, especially kids, who weren’t keen on actually reading, or people who were sight impaired, or… you get my drift. They were always a good idea for someone else.

Of course, thinking of them in that way meant that I never really tried them out for myself. 

It was only when my own circumstances changed that I learned my lesson. Quite unexpectedly, I found myself recovering from emergency spinal surgery, spending a lot of time lying down, and unable to work for an expended period. I was in pain, forced to rest, and couldn’t really focus my eyes too well for some time.

On an impulse, I purchased an audiobook and found myself completely engrossed in the story. When it finished, I bought another. And another. I was hooked. 

The audiobooks I listened to during my recovery kept me company when I couldn’t sleep, and gave me something to think about other than the pain. They took me out of my hospital bed and carried me to different places. They gave my mind something to do when my body couldn’t do much at all. They were great for my mental health. And I really enjoyed them. 

Now, I listen to audiobooks on my commute to work each day, instead of getting steamed up over news and current affairs on the radio. I listen when I am resting, which I still need to do as my back is still healing. I often listen during my lunch break at work, which is actually much healthier than working straight through it as I have tended to do for most of my career. I listen while doing the dishes. 

Audiobooks have not replaced my reading time. I love reading books, and treasure the time I get to spend in them. That will never change. I’m a book nerd, through and through. Even a cursory glance at my Goodreads profile, Twitter feed or Book Squirrel blog will testify to that. 

Listening to audiobooks has also enabled me to add another dimension to my book blog, with audiobook reviews being added to the repertoire, along with Indie book reviews, author spotlights and interviews, and other bookish goodness. As I like to deliver varied and interesting content, that has been a bonus. 

Audiobooks have enhanced different times in my day when I can’t read, and made them more interesting and stimulating. They may not be for everyone, but adding some great listening time to my routine has been a positive and enjoyable development for me.  

Catching The Train.

Today, I caught a train to Melbourne. Perhaps I should have thought about that a little more.

wordynerdbird1 Comment

Today I caught a train into Melbourne for an appointment tomorrow. 

That doesn’t sound like a big deal, but.. ouch. 

I didn’t even think about only being seven weeks post-surgery when I got on the train.  I probably should have done, though. 

Here’s the thing. A country rail journey here is bumpier than a car trip and the jostling is constant. You can’t adjust the seat or change your position, so it is what it is. 

The great thing was that my travelling companions were a. people I know well, b. very helpful and c. not actually able to walk much faster than me, so apart from the jiggling it was quite a good trip. 

By the time we arrived at Southern Cross Station in Melbourne, my back was feeling very tender indeed. It was great to get off the train and walk for a bit, which helps to relieve the inflammation and get the circulation going again. 

I also really like this railway station. Melbourne has two iconic stations: Flinders Street Station is old and beautiful, while Southern Cross is funky and cool with its sleek designs and wavy roof. I find it hard not to look up at that roof and think, “That’s SO cool!” 

  • Southern Cross Station from outside.
  • Inside Southern Cross Station, underneath that funky roof!

From the station, it was only a short cab ride to the hotel. Now that I am lying down in my hotel room and have had some ibuprofen, I feel quite okay, so no harm done. 

The Problem of Not Overdoing It.

“Don’t overdo it!” everyone says.
Sure. No problem.

wordynerdbirdLeave a comment

One of the things practically everyone has said to me since I came home from surgery is “Don’t overdo it!”

I fully understand their concern. My back is still healing, I can’t sit upright for any length of time without pain, and it would be easy to screw up the progress I’ve made so far. 

I, on the other hand, have been determined to see what I can do, given that I’m quite aware of what I can’t do. It’s also fair to say that I’m feeling the deadlines marching upon me like automatons trained to take me hostage until I meet my obligations for the end of the year. 

Last week, I managed three days at school before I had to admit that I needed to rest. I stayed home on Friday and spent it recovering from three days in a row of doing more than I had done in weeks. 

This week, all our students’ exams and assignments are supposed to be marked and their end-of-year reports written by Friday.

Sure. No problem. 
That’s totally achievable.   *sigh*

I can honestly say I’m trying. Today I’ve graded essays and assignments, and written my evaluations of those tasks for the reports. I’ve had to do that lying in my recliner with my laptop propped up on my knees, because sitting for that long isn’t an option. My eyes are starting to blur, and my brain is mush. I can’t remember how I ever did this stuff on a daily basis without going mental. 

But hey! At least I’m writing… something. 

Today I talked with my GP about my progress, how I am healing, and what I can reasonably expect. She reminded me I had to be patient, to be kind to myself and not expect too much because my body has had significant trauma and I’m still healing. That’s actually where my body and brain are going to be expending most of my energy for some time yet. 

I know she’s right.

My frustration is that it’s really hard to balance being kind to myself in that way with being professional and doing my absolute best for my students and my school. I don’t know how to make both things happen at the same time. 

I know tomorrow is another day, but it’s also a day closer to Friday and those deadlines that it brings. 
And you know, they matter. The whole school has to work on the same timeline so that everything is done well and on time. 

I don’t want to be the one to let everyone down, and I can honestly say that if it weren’t for the absolutely beautiful and generous heart of my colleague who has taken on doing all of that for my Year 11 class, I wouldn’t have any hope of getting everything on my “to do” list done.

In fact, everyone at school has been absolutely marvellous and supportive, and while I’m grateful, that actually makes it harder for me to ask for more time or more help. I don’t like asking for special treatment, and I hate the thought of it looking like I’m wimping out. I hate to admit it, but the work ethic in which I have taken pride for so long is actually not doing me any favours right now.   

I know. I know. 

So, tomorrow I will simply head back to work and do what I can in the day without overdoing anything, and trying to be kind to myself.

Easy.Right?

Sure. No problem. 

Current Status: Bearing Up Quite Well!

Current Status: Onward and Upward!

wordynerdbird2 Comments

It’s just over four weeks today since my spinal surgery, and I am really happy to be able to say that things are going very well.

My efforts toward moving better, walking further, regaining my strength and working toward a return to work before the end of the year have been yielding good results.

I am able to stand longer, sit longer, walk further and manage my pain better than I was even just a week ago. I have driven on my own, for ten minutes each way, and then twenty, to build up my ability to drive to Warrnambool for work.

On Friday night my husband drove me to Warrnambool – a 45 minute drive – so that I could attend to the graduation dinner for my senior high students who have now finished their formal school education. I didn’t last the whole night, but I did get to wish my past students well. I was really pleased to be able to do that because I wanted to show them that they mean a lot to me and that I am enormously proud of each one of them.

This was a huge achievement for me – it was my first “big outing” post-surgery, and I am proud of myself not just for getting there, but also for recognising my limits and leaving when I needed to. As soon as I was home i cracked out the really big pain meds, and went to bed.

On Saturday, I went back to Warrnambool with my cousin Angela, who just happens to be my partner in crime when it comes to Charlie Bear collecting. We both have a penchant for those particular bears, so an invitation to celebrate Charlie Bears birthday and witness the unveiling of the annual birthday bear was one we were both keen to accept.

I didn’t adopt the anniversary bear reserved for me: she is beautiful, but too pink for my taste. Anyone who knows me knows that the only time I like Pink is in my music collection, so that bear went home with Angela instead. I adopted a little black bear named Teddy and a little panda named Bobble instead. They will both be featured soon in my #abearandabook posts on Instagram.

I came home having coped really well with my second trip to Warrnambool in two days. It was a deliberate decision to do back-to back trips, because that’s what I am going to have to do when I return to work.

Today I drove to Camperdown again with a different purpose in mind. I will tell you more about that tomorrow when the details of my mission can be made public, but I can tell you that today’s significant achievement was walking down a set of steps – and back up again later – without pain. I can’t remember when that last happened, but it was at least a decade ago. 

I am very optimistic about returning to work on Tuesday.  I know I have to take it easy and not overdo things, but I am keen to do what I can to pick up the pieces of my life and see what I can do with them. We”ll see how it goes!